Kelantan

Kelantan’s First Psoriasis Awareness Programme: A Milestone for Patients and Community

Bringing visibility, validation, and vital information to those living with psoriatic disease

On 28 June 2025, the city of Kota Bharu witnessed a landmark moment for people living with psoriasis in Malaysia. The Psoriasis Association of Malaysia (PAM) hosted its first-ever Kelantan Outreach Program at Hotel Perdana, marking a significant shift in bringing awareness and support directly to communities beyond the Klang Valley.

Themed Psoriatic Disease & Comorbidities, the event aimed to increase public understanding of psoriasis, a chronic, non-contagious autoimmune condition that affects the skin and can have deep physical, emotional, and social impacts.

For many in attendance, this event represented more than just an awareness campaign. It was a rare and needed space where patients, caregivers, healthcare professionals, and community members could come together, share, and be heard.

During the opening, Dato’ Dr. Mohd Azman Yacob from the Ministry of Health emphasized that psoriasis is not contagious, and highlighted the importance of emotional and community support in the lives of those affected. His call for more outreach programmes in rural areas resonated deeply with the audience, especially among patients who often feel forgotten in larger health discussions.

PAM President Ms. Sofia Lovi also reminded attendees of the urgent need to dismantle the stigma surrounding psoriatic disease. Her message was clear: empathy, education, and collective action are essential in improving the quality of life for those with the condition.

One of the most powerful moments came from the personal stories of Puan Yuzlina and Encik Wan Mohamad Hafiz, who shared their experiences of living with psoriasis for over 20 years. Their testimonies reflected the daily struggles many patients face.  from the physical pain of inflamed skin and joint stiffness to the emotional burden of misunderstanding, isolation, and rejection.

“A typical day during a flare-up can be exhausting,” shared one speaker. “Sometimes, getting out of bed is the hardest part. But the hardest part of all is not the physical pain,  it’s not being accepted for who you are.”

The event also featured a panel discussion led by Dr. Azura Mohd Affandi, PAM’s medical advisor, alongside specialists in dermatology and chronic disease. The panel shed light on psoriatic comorbidities including arthritis, cardiovascular issues, diabetes, and mental health emphasizing the need for long-term, multidisciplinary care tailored to each patient’s needs.

The programme concluded with free health screenings by Caring Pharmacy, and many attendees left feeling informed, supported, and hopeful. Patients and caregivers expressed deep appreciation for the initiative and called for more community-based, patient-focused engagements in the future.

For many patients in Kelantan and beyond, this event marked a turning point - proof that their voices are beginning to be heard, and that their experiences matter.

PAM extends its heartfelt thanks to the Ministry of Health, local hospitals, healthcare providers, volunteers, and the broader community for their continued support.

We may be a small community, but we are not alone.

To learn more or connect with others living with psoriasis, visit https://www.psoriasismalaysia.org/

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